YKPI Received Award from the Ministry of Health

Jakarta – The Indonesian Breast Cancer Foundation (YKPI) received an award for the institution that has realized the GERMAS for category of Prevention and Control of Non-Communicable Diseases in Indonesia. The award was given in the ceremony of National Health day (HKN) 2020, Thursday (11/12), which was held virtually. It was attended by the Minister of Health, Terawan Agus Putranto, and all Ministry of Health officials.

“I am grateful and was not expecting to receive this award,” said the chairperson of YKPI, Linda Agum Gumelar in her statement after receiving the award.

“This success and award is not only for us: YKPI, the board and the pillars, but also for all breast cancer fighters in Indonesia,” she continued.

Linda said that the award would further boost YKPI’s enthusiasm to continue disseminating early detection of breast cancer in Indonesia, in order to reduce the occurrence rate of advanced breast cancer.

“It is impossible for the government to work alone. Indeed, there must be three pillars to build this country, namely the government, society, and the private sector. This is where YKPI always plays its role as part of the society in reducing the occurrence of advanced breast cancer,” said Linda.

Linda said further, the award for YKPI given by the Ministry of Health was also inseparable from the non-profit organisation’s commitment to applying 3M in the community of breast cancer survivors. According to her, the 3M (washing hands with soap, wearing masks, and keeping physical distance) is an effort to break the chain of spreading the Covid-19.

“YKPI always campaigns for the 3M movement. We do this all the time, and we always voice out for it in every event.”

Linda also said that YKPI had prepared a number of programs in 2021, in order to continue the commitment to reducing the occurrence rate of advanced breast cancer in Indonesia. Among others, YKPI will continue the socialization of breast cancer early detection through virtual channels that aims to reach wider society of Indonesia. In addition, YKPI will also carry out the TOT on Breast Self Examination (SADARI).

“We are also preparing for the virtual gathering of SEABCS. That way, we do not only play our role in the country, but also for the international communities where YKPI has contributed a lot,” said Linda who is also a breast cancer survivor.

Meanwhile, in his speech, the Ministry of Health, Terawan said that the National Health Day 2020 was a momentum to create a healthier Indonesia, by taking care of ourselves, our family and the society.

“Save the country from the Covid-19 pandemic by keeping physical distance, wearing masks, and washing hands frequently. Let us together improve the quality of public health to become better for the country and the nation,” closed the Minister.

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Love Yourself by Doing Early Detection of Breast Cancer

Jakarta, YKPI – The Indonesian Breast Cancer Foundation (YKPI) encouraged Indonesian women to perform breast cancer early detection as a form of loving themselves. The appeal was conveyed by the manager of YKPI Shelter House, Nani Firmansyah in a live IG with @doktertono, recently

“To all Indonesian women, please love yourselves by doing early detection. We know what’s happening to our body,” said Nani in the occasion.

She also encouraged Indonesian women to be more sensitive to their breasts condition, whether it is physical change or some discharges which could lead to breast cancer.

“Please try to observe any breast abnormalities, for example the nipples is pulled in, any dimples in the breasts, or the skin becomes rough,” she explained.

Nani herself is a cancer survivor. She was diagnosed with first stage of breast cancer in 2004, even though she never felt any sickness or touched any lumps.

Not wanting to gamble with time, Nani was determined to undergo a mastectomy on her right breast, after getting second opinion from three doctors.

“After being diagnosed with breast cancer, I just surrendered, yet I still wanted to be healthy. I must be recovered. I must be and I can. What surprised me after the surgery was that my breast became flat,” said Nani.

However, she managed to recover from breast cancer, due to her patience and perseverance. Thanks to her family’s support and her painstaking in consuming medicine for eight years.

“The sooner it is treated, the higher percentage you will be cured. That made me enthusiastic. That was something that I had to go through. So I just enjoyed it, despite the pain of undergoing the chemotherapy,” closed Nani

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YKPI: Healthy Women Should not Be Lazy for Early Detection

Founder and Chairperson of the Indonesian Breast cancer Foundation (YKPI), Linda Agum Gumelar encouraged Indonesian women, including those who feel healthy, not to be lazy doing early detection.

“So, for those who are healthy, remember there are 6 new cases of breast cancer in every 6 hours. If you don’t want to be part of the new cases, please do early detection through SADARI (breast self-examination/BSE),” Linda said at a webinar held by Radio Sonora Surabaya (10/27).

The webinar hosted by Goorda Girlandia was held in celebrating the international breast cancer awareness month, entitled ‘The Right Steps Breast Cancer Patients Need to Know’. Beside Linda, dr Ario Djatmiko FICS was also one of the speakers in the webinar.

In addition to describing the YKPI’s program, Linda also advised women not to be afraid and never postpone medical examination whenever there is a lump or abnormalities in the breast. This is important to make sure whether the lump is cancer or not.

Dr. Ario shared similar opinion with Linda’s statement, that not all breast lumps would be cancer.
“However, it still has to be checked immediately so that it can be known early whether it is just a tumor or cancer. The point is never put off the examination,” stressed dr. Ario.

The founder of the Surabaya Oncology Hospital underlined that the speed of patient’s examination and the accuracy of the action would determine the patient’s recovery.

“The speed is in the patient. If the treatment was given when it’s already late, the results were below expectation,” said dr. Ario.

Linda added that breast cancer survivors need support.

“Give support to the survivors. All they need are enthusiast and smile. For the rest, they will face the treatment by themselves,” said Linda.

As to the survivors – Linda who is also a breast cancer survivor, asked them to keep fighting enthusiastically, stay optimistic, and always pray to God.

The former Minister for Women Empowerment and Children Protection also encouraged survivors not to hesitate joining breast cancer communities, so they can share and support fellow survivors to keep confidence and enthusiastic in taking treatment.

“That way we will be happy and enjoy this life positively. This will influence our body immune during the treatment. So, I hope survivors will join the community, where we feel comfortable being part of it. The community usually has doctors to assist or provide consultation. Or even there is a survivor who is also a doctor, and is willing to share information. Never feel alone,” ended Linda.

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Let’s Do Breast Self-Examination (SADARI) Once a Month

Breast Self-Examination/BSE is an important step that needs to be done regularly in order to find out abnormalities in the breast, including recognizing breast cancer so that it can be prevented early.

Even though it is simple, there are still many women hesitate to perform BSE routinely, even never done it at all. Breast examination can be started as early as 12 years, and done every month.

The coordinator of the Indonesian Breast Cancer Foundation (YKPI) Mammography Car program, dr. Hardina Sabrina, MARS explained that breast examination should be done once a month because it relates to the female estrogen hormone.

Breast touching is done when the estrogen level decreases on the seventh until tenth day since the first day of menstruation.

“It is the best time to perform BSE (SADARI) because the breasts are not tight, so they don’t hurt when touched,” she explained to Kompas.com.

For women who already have menopause, BSE can be done on certain date which is easy to remember, such as every 1st date or date of birth.

Below are some stages of performing Breast Self-Examination (SADARI):
Stand in front of the mirror and raise your hands. Make sure that your shoulders are parallel. Then put your hands on the waist. Pay attention to the breasts, whether they are symmetrical or not, changes in shape or color, swelling, and or changes in the nipples. Abnormalities that may be found are lumps, wrinkles, abnormal nipples position, skin structure, or redness.

Raise your hands behind your head and push your elbow forward. This is to see whether there are any abnormalities in the breasts or not. Normal breasts will be lifted simultaneously.

Use your fingertips to press the surface of breasts gently. Feel if there is any lump in the breasts. Touch each breast surface in several patterns, such as circular, right to left, top to bottom, central to the side, or up to the armpits. Squeeze the nipples slowly. Observe if there is any discharge or not. The discharge color is usually white, yellow, or blood. This indicates abnormal breasts.

Bend over and look in the mirror. Observe and touch whether there is any change on your breasts or not.

Check the breast in lying down position. Provide cushion on the side of the breasts to be examined. Place your hands on the back of your head. Use fingertips to examine. Perform a thorough examination, if you find any of the indications mentioned above, please consult a doctor immediately.

“Make sure to perform a thorough examination. Breasts are divided into 4 quadrants, of which all of them must be examined. This needs to be done every month, at least 7 – 15 days from the day of menstruation,” she said.

Circumstances to Watch Out after Doing BSE

After doing breast self-examination (SADARI), you may already be able to recognize whether there is something different on your breasts. Some conditions that need serious attention include:

• a lump is palpable
• thickening of the skin
• changes in breast size and shape
• skin wrinkling
• discharge from the nipples
• pain
• swelling of the upper arms
• lumps in the armpits or neck

if you find such abnormalities or feel any changes compared to the condition in the previous month, please consult a doctor for further examination. The doctor will later determine whether the lump is dangerous or not.

“In principle, there is no lump in the area under normal circumstances,” concluded dr. Hardina.

Source: Kompas.com

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Pravita’s Way to stay Cheerful in Facing Breast Cancer

Jakarta, YKPI – Five years ago, to be precise at the beginning of August 2015, Pravita’s world suddencly gloomy after receiving a birthday gift from a doctor: she was diagnosed with stage-two breast cancer. Moreover, said the woman who is usually called Vita, the diagnosis came when her twins: Aiko and eiko were only two years old.

Support from family and closest friends came pouring. She made up her mind to take medical treatment.  As a result, the lump in her breast was successfully removed by surgery.

“After the surgery, then I got radiation and chemotherapy. Until now I routinely have medical control every six months. If I have time, I do it once in three months. I still do it,” said Vita lately.

Vita has now survived breast cancer. Learning from her experience, Vita said there are two ways to avoid getting lost in feeling of sadness and fear when you become a cancer survivor.

The steps are to keep a positive mind and kind heart. According to the mother of 4 children, positive mind is very important to survive from the frightening breast cancer.

”As for keeping our heart is also important so that we can be sincere and whole-hearted. If we are sincere, the diseases will be far away,” Vita said.

She further said, during the Covid-19 pandemic cancer survivors must be more discipline in keeping their healthy, namely by exercising regularly and stay at home, if possible.

“Don’t go outside often, keep the distance, and wear a mask, because it helps your stamina. Get enough rest and don’t feel down either,” said the travelling enthusiast.

Being Wardah Brand Ambasador

Asked about her involvement as one of the ambassadors for Wardah Ayang Cempaka’s newest lipstick product, Vital felt proud and had never thought before that she could become an important part of her favorite cosmetics.

“It is a pride and experience that will never be forgotten for a lifetime. Moreover, the sales proceeds will be contributed to the breast cancer early detection program in partnership with YKPI. I surely am very proud, and moved, touched: all mixed up. My family is also definitely proud and supportive,” said Vita who was chosen to represent breast cancer survivors.

Vita, who is also active in the YKPI Pita Pink Survivor Warrior, mentioned that the three series of lipsticks that she promotes are in line with her life principles.

“As women, we must have the courage to take action. Even if we are diagnosed with breast cancer, don’t be afraid to take medical treatment. Get rid of negative thoughts and believe that we can fight the cancer. We must be strong, courageous, and keep thinking positively. That way, we can immediately move on from pain and sorrow,” Vita stressed.

Vita also emphasized that her involvement in the breast cancer community had supported her in undergoing her previous treatment. According to her, fellow community members always support, strengthen and care for each other.

“We will never be able to face all the problems ourselves. Besides family support, we definitely need support from friends.  Moreover, in the community we can also share with those who are more experienced, so we can improve our knowledge about breast cancer,” said Vita while encouraging Indonesian women to carry out breast cancer early detection regularly.

Vita also described the behind-scenes process during the Wardah’s ambassador photo shoot. She admitted that she felt nervous because during the photo shoot, she was not only asked to look beautiful, but also to express her emotions as a breast cancer survivor.

“So this is not just an usual photo shoot, but the photographer really wanted to reveal my emotions, until I cried when doing the photo shoot,” recalled Vita closing her story.

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Nitta: Breast Cancer is Not the End of Everything

Almost perfect. That was such short sentence imagined by Nitta Suzanna before she was diagnosed with breast cancer on November morning, 2015.

The small lump on her right breast made Nitta worried, anxious, and finally confused. She tried to be strong, but her heart said otherwise.

“My heart was getting ready, but not for an ordeal of this magnitude. But life must be faced,” said Nitta.

Amidst her anxiety, Nitta tried to collect as much information as possible from the internet. The results of the search made her determined to see a surgical oncologist.

“I didn’t want the lump stay on my body. Do whatever is necessary to make me recovered,” said Nitta recalling what she said to the doctor back then.

Five days after the examination, she underwent a lumpectomy surgical. The result was that she got breast cancer with positive ER and PR, and negative HER2. Even worse, the cancer was already in stage 2A grade 3.

“I was shocked, sad, angry, stressed, and frustrated. All feelings were mixed, imagining the possibilities that might happen,” she said

Being determined not to give up on the circumstances, Nitta tried to stay strong. Support from her family became her medicine to recover from the disease with the first death rate in Indonesia.

“I have children who became my biggest motivation. I should not be discouraged,” Nitta said.

She continued her treatment with six chemotherapy sessions, 25 radiotherapy sessions, and hormone therapy for five to ten years. Once in a year, the 42-year old woman still has to take PET scan and mammography routinely to make sure that she is clean of cancer cells.

“Maintaining a diet, getting enough sleep, avoiding stress, exercising frequently, and living a healthy life are my priorities. That way, I can be physically and mentally healthy,” said the woman who loves singing.

“Breast cancer is not the end of everything. Not for me, not for you either. Let’s keep on fighting, do our best and let God do the rest,” closed Nitta.

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Onna’s Secret to Stay Active despite Her Breast Cancer

February has become an unforgettable month for Onna Rawung. Four years ago, precisely in the middle of February 2016, doctors diagnosed her with breast cancer.

Onna had cursed herself remembering that she had never neglected the health of her breasts, including always underwent surgery every time she found a lump.

“In 2006, I underwent a surgery for removing benign tumor. In 2012, there was another benign tumor, and it was also removed. So, every time I found a lump, it was immediately removed,” said Onna when contacted by Jurnas.com

In November 2015, another lump appeared again on her breast. She was preparing for the Christmas celebration. But this time, the lump persisted. It was different from Onna’s previous experiences.

Finally in February 2016, Onna went to see the doctor again. She was recommended to have an USG, and the result turned out to be malignant. A week later, she returned for a second biopsy. This time, the result was different. Tumor on Onna’s breast was found to be benign.
“Well, it was finally a normal surgery,” recalled Onna.

After the surgery, the results were solid. The bad news only came after the results of pathology anatomy (PA) test came out. Her tumor was diagnosed malignant, namely breast cancer.

“I was definitely shocked, silent. I went to see the doctor, but stayed silent. I didn’t wash hair for a week, and I told nobody in my family except my husband. A week of silence,” Onna recalled.

The first week was a scourge for Onna, considering she had a child who was still in junior high school back then. On the other side, she also had 250 teammates who were under her responsibility.

Onna then decided to fight against the disease. With all she could do, she tried to look active and healthy in order to convince people around her that she was fine.

“At the office, I only talked to the general manager and HRD. While to my team, I told no body except my secretary,” she said.

To get around the time, Onna usually came to the hospital at six in the morning to have radiation, so that she could get the first queue. She would already be at the office at half past eight.

“I made all believe that it was as if nothing happened. Yes, I had cancer, but it became a scourge only for the first week. After that, I had to get up,” said Onna.

“At the beginning, I was very independent. I didn’t want to look weak. The point was I had to get through this, and it was not something to be sorry for,” Onna continued.

In addition to strengthening herself, Onna also received full support from her family. Instead of asking for pity, Onna always reminded her family to keep living a healthy lifestyle and perform early detection routinely.

“Cancer is not the end of everything, but a beginning for us to rise. This is something that we can fight, in the sense that everything will be alright if we undergo the treatment well and under control,” concluded Onna.

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High-Risk of Covid-19 Transmission, Cancer Survivors Are Urged to Follow Health Protocol

The oncologist surgeon Dr. dr. Sonar Soni Panigoro, SpB.K.Onk MARS MEpid urged cancer survivors to pay attention to the health protocols. He said that cancer patients and survivors who are undergoing treatment are vulnerable to contracting the new Corona virus (Covid-19) which is currently hitting the world.

“The disease (Covid-19) is easily transmitted, and there are several groups of people who are susceptible to infection, including cancer patients,” dr. Sonar explained in a short video related to the Breast Cancer Awareness Month, which is celebrated every October.

“However, various protocols have been prepared in health facilities. Therefore, the risk is smaller,” he continued.

Despite the Covid-19 pandemic, dr. Sonar advised cancer survivors and patients to keep undergoing treatment in the hospital.

The alumnus of the Faculty of Medicine of University of Indonesia said that postponing treatment would actually make the cancer worse.

“So we need to continue the cancer treatment while implementing the health protocols. God willing, everything will go well,” he ended.

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Early Detection Increase Recovery Chances from Breast Cancer

Early detection increased the recovery rate for breast cancer patients, said Chairperson of the Indonesian Breast Cancer Foundation (YKPI), Linda Agum Gumelar in the “Breast Cancer Awareness Month: Care and Cure” activity, held by @America recently (10/23).

She emphasized that early detection is one of the most important things to find early stages of breast cancer.
“It means if there is something, the illness could be cured if it was found at early stage. Therefore, the campaign on breast cancer early detection should be done properly,” said Linda.

Linda continued, based on the 2018 Globocan data, there was a new case of breast cancer in every 9 minutes, and most of the new cases of breast cancer were already in advanced stages.

CEO Brem Foundation, Andrea Wolf shared similar information. According to her, patients with early stage breast cancer have higher life expectancy and quality of life compared to those who only found out the cancer when it was at advanced stage.
“Breast cancer is actually not scary. As the matter of fact, it can be cured at early stage, but still very few people know it. That’s why we, from Brem Foundation are trying to tell this,” said Wolf.

In addition to early detection, Wolf continued, knowing the risk factors should also be done, for example, whether there is a family history of breast cancer or not.
“For anyone, at any age, please find out the risk factors. There is no harm to do early self detection, because we will know if there is something abnormal in our breasts,” added Wolf.

Carmen Marshall, a breast cancer survivor from the United States of America also emphasized the importance of doing early detection. She was diagnosed with breast cancer around 17 years ago, and lucky that the cancer was still at early stage.
“Early detection is very important because it may save lives. Surviving is to find cancer early,” said Marshall.

There are several ways to perform early detection. Namely finding out the risk factors such as from the family health history, doing breast self-examination, clinical examination, and mammography. However, mammography is recommended for women aged 40 years and over.

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Covid-19 Complicates the Tasks of Cancer Patient Assistants

Jakarta, YKPI – Covid-19 pandemic has hampered the process of assisting cancer patients, said Ning Anhar, coordinator for breast cancer patient assistance training by the Indonesia Breast Cancer Foundation (YKPI).

Even certified companion training, which is usually held regularly every year, should be canceled for a while as part of the effort to prevent the spread of Covid-19.

“We have not been able to carry out the recertification that should be held for alumni who have been giving the assistance for three years,” said Ning during the gathering of alumni of breast cancer assistant training batch I-V recently. “Current condition makes it very difficult for assistants to provide assistance to breast cancer patients in hospitals and homes,” Ning continued.

However, despite the difficulties so that they are forced to give virtual assistance, Ning said that a number of training alumni continued to assist cancer patients, while still implementing strict health protocols. “We must give appreciation to our assistants who keep providing assistance to patients under the Covid-19 condition,” said Ning.

In her remarks, Ning also talked about palliative care which is in line with the task of breast cancer patient assistants. She emphasized that palliative care is beneficial for achieving a comfortable quality of life for cancer patients and their families, as well as obtaining a dignified end of life.

“This palliative care aims to reduce patient’s suffering and provide support both for the patients and families who experience physical difficulties, psychological symptoms, social and spiritual difficulties,” said Ning. “Palliative care is also a necessity and a human right for people with diseases that are difficult to cure, or in an advanced stage,” Ning concluded.

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