Celebration of 16th Years of YKPI, Linda Gumelar Encourages Men Not to Hesitate to Do Early Detection

Entering the age of 16, the Indonesian Breast Cancer Foundation (YKPI) led by Linda Agum Gumelar, was committed to continuing to disseminate the importance of early detection of breast cancer to remote areas of the country.

Linda hoped that the higher level of public awareness of the health of her breasts would have a significant impact on the declining rate of advanced breast cancer patients in Indonesia.

“I hope this time it is not only women who conduct early detection, but also men. Because even though it’s still rare, it doesn’t mean that men can’t get breast cancer. So from now on, men should not be shy to make early detection of breast cancer either with BSE or SADANIS, “Linda invited.

Breast cancer in men is still relatively rare. The cases are 100 times less frequent than in women. Even so, Linda said breast cancer in men should not be underestimated.

Based on data from the American Cancer Society, in 2018 an estimated 2,250 cases of breast cancer in men were found and 480 of them are estimated to have died.

Meanwhile, referring to data presented by the Ministry of Health in early 2019, there was a breast cancer rate of 42.1 per 100,000 population with an average death rate of 17 per 100,000 population.

With early detection efforts in women aged 30-50 years, Linda hoped, cancer would be known early too, so that the cost of therapy is not too expensive and the possibility of recovery can reach 90%.

Linda further mentioned that 70 percent of people who did early detection turned out to have advanced-stage breast cancer.

Responding to this matter, Linda  who is a breast cancer survivor said YKPI had prepared several programs to support the government in reducing the incidence of advanced breast cancer.

In addition to socialization on the importance of early detection of breast cancer to various community groups, high school and college students in various regions of Indonesia, YKPI also held TOT on physicians, as well as free mass screening through a mammography mobile unit (UMM) in collaboration with RSK Dharmais.

YMPI UMM is the first and only mammography car in Indonesia. The distance is still very limited because of the condition of the mammography equipment in it that requires special care, so it can only reach the Jakarta and surrounding areas.

Until now, based on YKPI data, 13,264 people have performed mammography at UMM with 1,982 people known to have benign tumors and 208 people who have malignant tumors.

“Certainly the YKPI mammography team consisting of professional medical personnel from Dharmais Hospital will recommend those suspected of having benign or malignant tumors to carry out further clinical examinations at the hospital, so that the cancer can be treated clinically,” Linda continued.

Another YKPI program is cancer patient companion training. Not long ago, YKPI held the training again, carrying a total of 310 assistants during the 5 years of training having been internationally certified by TÜV Rheinland.

These assistants will later help patients and their families to better understand how to deal with the patient’s emotionally unstable condition in order to continue to be enthusiastic about conducting a series of medical treatments.

At the international level, YKPI is active as a member of Reach to Recovery International (RRI) and Union for International Cancer Control (UICC), a leading organization based in Geneva, Switzerland with a global civil society network representing nearly 2,000 organizations in 170 countries.

YKPI is aware that efforts to prevent and control breast cancer in Indonesia need to be done by all parties, both the government and the community. For this reason, Linda added, YKPI, which he founded in August 19, 2003 along with other survivors, such as senior artist Rima Melati, Tati Hendropriyono, Andy Endriartono Sutarto and the late oncologist Dr. Sutjipto, always supported the government program and collaborated with various parties in carrying out the program including the private parties.

Entering the 16th year of YKPI’s work for Indonesia, Linda hopes to soon have a chemotherapy car unit, have its own shelter to accommodate more patients, and more people care about breast cancer so they are not afraid and shy to do early detection.

“For that reason, we will not stop giving information about breast cancer and early detection socialization, either directly or through social media channels managed by YKPI,” concluded the former Minister of Women’s Empowerment and Child Protection of the United Indonesia Cabinet enthusiastically. Happy birthday to YKPI.

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Becoming Viral: A Medicine for Cancer. This is What YKPI Says

For the last few days information circulating about the production of “bajakah” local plants in Central Kalimantan was said to cure breast cancer, which has been studied by two high school students in Palangka Raya.

Bajakah is actually the name for the trunks that are part of a plant. The term “bajakah” plants does not yet refer to certain species.

Responding to the news, YKPI Chair Linda Agum Gumelar said YKPI gave appreciation to school children who had found the Bajakah plant as an antioxidant for cancer.

“I appreciate our outstanding children who are internationally recognized at the high school level, but we also invite further research to be clinically tested, if it can cure breast cancer,” said Linda, who was met after the Dwi Windu YKPI event at the National Library of Jakarta, Thursday (8/22).

If it is considered clinically according to Linda, it certainly needs a gradual research, whereas until now it has not been known what causes breast cancer.

“The point is that we encourage that the findings can be followed up by clinical researches,” she said. She also appealed to related parties to be able to control the Bajakah plants which were freely labeled in e-commerce.

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At the 80th Birthday, This is The Recipe of Rima Melati’s Physical Fitness

Senior artist Rima Melati looks beautiful and elegant with a pink bandage, when met on the sidelines of the 16th Indonesian Breast Cancer Foundation (YKPI) anniversary, on Thursday (22/8) yesterday, at the Jakarta National Library Building .

Coinciding with the YKPI Anniversary, Rima who was famous through the 1980s’ popular film “Kupu-Kupu Putih” was apparently also having her 80th birthday on the same day.

“Yes, thank you for the prayer,” Rima told Jurnas.com.

At the age of 80, Rima still looked fit. She did not look uncomfortable when serving requests for photos from dozens of invitations who attended the YKPI anniversary celebration.

When asked for a fresh, healthy recipe in old age, Rima smiled. She said no special recipe was needed. The only recipe is to be thankful to God.

“We must always thank God. Because God is our lover, who can make everything we don’t think come true, “said the board of trustees and founder of the YKPI.

Even about food, Rima often doesn’t bother. She has no restrictions on certain foods, although she still must pay attention so as not to overdo it.

In addition, at the age of 80 Rima admitted that she still often hangs out with her peers. Routine gatherings that she believes is good to keep herself happy.

“It’s important, maybe we have shortcomings, so there are corrections from others,” said the woman born on August 22, 1939.

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Discovery of Drug Cancer Needs Long Clinical Test

Until now, information is still circulating about “Bajakah” plants in Central Kalimantan that are rumored to be able to cure breast cancer, following research by two high school students in Palangkaraya.

Bajakah is actually the name for the trunks that are part of the plant. The term pirated plants does not yet refer to certain species.

Responding to the news, Chairman of PERABOI (Association of Indonesian Surgical Oncologists) dr. Walta Gautama, Sp.B (K) Onk, explained that if the discovery of a cancer drug is not instant, the process must be clinically tested.

The first thing to declare as a cancer drug is to say that oncology specialists are not easy. It must be clinical trials first. There is a level starting from what the drug contains, what contents and how useful are the substances are useful.

“From there we know that these beneficial substances after being tested in the laboratory will react like cancer cells. The mechanism is like what, then we try to apply starting from low animals such as mice, where the effects on organs are seen, how to blood, how to the kidneys, how to the brain, how is the difference, how is the dosage, and so on. So the process is very long, “said Dr. Walta while explaining further trials also need to be applied to humans.

The findings of high school students who reportedly have high levels of anti-oxidants, Dr. Walta really appreciated their achievements. Even so, we need to be careful with news that is too booming.

“Remember the fantastic red fruit and then everyone is looking for it. Because of the booming information about the red fruit that can treat cancer instantly, there are cancer patients who prefer to consume the fruit and delay treatment, it turns out that six months later coming to the doctor’s stage was already high, “he said when met by Journalist at the 16th YKPI Anniversary event. , at the Jakarta National Library.

Another example told by Walta is the discovery of soursop leaves. The news was viral that made cancer patients who were originally known only stage 1 or 2 leave medical treatment instead rose to stage 4 after consuming soursop leaves.

“We do not say no to the patient who wants to try, but please do not leave the medical,” concluded the doctor who opens medical services at the Dharmais Cancer Hospital.

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Reason for Wanda Hamidah to Become a Breast Cancer Ambassador

Cancer is one of the leading causes of death, especially in women. Referring to Globocan 2018 data shows that the incidence of breast cancer in women in the world occupies the position of the most cancers, approximately 42.1 percent with a breast cancer mortality rate of 17 percent.

For this reason, the public figure aroused Wanda Hamidah’s concern to join as Ambassador of the Indonesian Breast Cancer Foundation (YKPI). Within 12 years Wanda felt how difficult it was to get women to be aware from the start.

“Basically, I want Indonesian women to be healthy and strong. Breast cancer awareness can be improved if breast cancer is the number one killer for women. That is the reason that makes me concerned about conducting awareness campaigns for early detection for women, “said Wanda at the 16 years’s  YKPI event in the Jakarta National Library, Thursday (22/8)

So what’s the goal? It can be followed up from the beginning not until further stages can still be treated. Because, according to Wanda there are still concerns for women for early detection.

“First, fear of the two costs. Fear, because breast cancer is still a scourge, even though it is increasingly afraid of being sustainable and if it is immediately resolved, it does not need to be cancer. Not to mention that there is fear that until her breasts will be removed later, as one of the vital tools, “she explained.

So, the challenge, according to Wanda, is indeed hard. “Because women have many roles, as children, mothers, wives, in the community, conditions will be more fragile, for example if women are sick. There is still a thought to have a complaint if illness becomes unimportant and puts family interests first, “she added.

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Cancer Patient Companion Technical Tips

Psychologist Nelly Hursepunny S.Psi said being a cancer patient companion must have the ability to understand the feelings or problems faced by a patient. Because, by being able to understand the patient’s condition, the companion know what must be done to help them.

“Assistance is a situation where everyone needs to continuously and systematically facilitate various problems faced by patients and their families or communities,” Nelly said in a cancer companion training event organized by the Indonesian Breast Cancer Foundation (YKPI), July 26-28, 2019 at LSPR Jakarta.

Nelly explained that there are three technical assistance that must be possessed by a facilitator. First, they must be a good listener, listen to every problem a patient tells. “Because there will certainly be many stories of problems being faced by patients who want to be shared to their companions,” said Nelly.

Secondly, the companion must have empathy to be able to understand how the patient feels, as if the companion feels the same as them. “Cancer patients will generally experience stress, anxiety, sadness and even depression. Therefore, they need empathy from the companion. Empathy means companion trying to understand and feel what he is experiencing,” she said.

Thirdly, the companion must have appropriate and correct communication techniques when interacting with patients. “Here, a companion conveys more things that are needed by the patient, instead of talking about the patient’s disease condition,” she said.

Nelly further explained, a good companion would not place herself/himself as a medical advisor. For this reason, companions may not provide medical advice to patients. “If indeed the patient asks, the companion must say she/he does not know and then guide the patient to ask directly to the doctor,” said Nelly.

In addition, Nelly said again, it is very important for the companion to maintain patient’s confidentiality. Companion is forbidden to disclose information given by the patient, let alone to be made public through social media, both in the form of photos and videos. So, are you ready to be a cancer patient companion?

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Psychologist: Cancer Patients Need Listeners Instead of Advisors

Cancer patients not only need medical treatment, but also need psychological healing. Therefore, according to psychologist Cindy Dwi Utami, assistance efforts are needed to overcome the psychological disorders experienced by each patient.

“Usually patients with chronic diseases such as breast cancer always face mental or emotional pressures in dealing with the problems they face. For that, we need a companion so that the patient can get out of these pressures, “said Cindy in a cancer patient companion training event organized by the Indonesian Breast Cancer Foundation (YKPI) on July 26-28 2019 at LSPR Jakarta.

According to a psychologist from the London School of Public Relations (LSPR), a companion must be able to adapt to the emotional condition of the patient. Because the emotional condition of each patient is different even though the pressure faced is the same that is a chronic disease such as breast cancer, so the companion must be able to be physically and emotionally present in the patient’s consciousness.

The role of the companion in accompanying a patient who is diagnosed with breast cancer is to be physically and emotionally present and this is known to the patient that someone is accompanying or accompanying him/her in the journey to face this breast cancer,” Cindy said.

In addition to that, the young psychologist said the companion must be able to be a good listener for patients. Because by being a good listener, a companion will be able to learn and understand what the patient is experiencing.

“Then the most important thing is to listen, because basically the facilitator is not an advisor, not a problem solver. The companion is someone who is present and tries to learn and understand what the patient is experiencing,” she said.

According to her, the awareness that there are people who try to accompany, accompany, and try to listen to the patient basically becomes a leap towards psychological healing in themselves.

Cindy added, the duty of a companion was only to help the patient to realize the potentials they had in themselves, so that they are able to treat the blanketing emotional pressures without relying on others.

“Therefore, letting a patient speak is one way to make the patient aware that within her/him she/he has the power to face problems,” she added.

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Dozens of Participants Participate in YKPI Cancer Patient Companion Training

The Indonesian Breast Cancer Foundation (YKPI) in cooperation with PT TUV Rheinland Indonesia and the London School of Public Relations (LPSR) held an international certified fifth class patient companion training on 26-28 July 2019 at LSPR Jakarta.

More than 70 participants consisting of Breast Cancer Survivors, YKPI Volunteers, Community Organizations, the General Public and Health Workers from Puskesmas and hospitals attended the training.

In the opening remarks, Linda Amalia Sari Gumelar as the Chairperson of YKPI received enthusiasm from the participants ranging from mothers, to several young participants who had just graduated from college. Different from previous years, this year feels special because there are two male participants.

Linda Gumelar hopes that the training can be used as a venue to train participants to become volunteers and medical personnel with the ability to build relationships and support breast cancer patients in overcoming their illnesses.

“We hope that volunteers who graduate from this training will later be aware of their roles and responsibilities as supporting volunteers, able to build relationships and be able to communicate with patients, so they can communicate effectively, understand the emotional impact of breast cancer and can provide positive strategic opinions in overcoming his illness, “Linda said.

In addition, Linda also advised that volunteers can help patients even with only assistance without seeing where and who has cancer. Because the assistance activities according to the State Minister for Women Empowerment and Child Protection of the Republic of Indonesia in the United Indonesia Cabinet II, is a necessity that is the responsibility of the volunteers.

“The most important thing is that the assistance does not have to be in the hospital, so wherever you are: meeting with anyone who has problems with cancer or breast cancer, you can accompany them,” said Linda.

Later, Linda continued, the participants will be registered with TUV Rheinland as volunteer companions, official patients, and even recorded online. “Through TUV Rheinland, the names of mothers will be registered internationally. We are there so if people see assistance, people can trust because we are there, ” she continued.

The training had several subjects: basic knowledge of breast cancer, diagnosis and therapy, the emotional impact of breast cancer and cultural sensitivity, breast cancer patient counseling techniques, and building relationships and communication skills.

Meanwhile, Mila, one of the participants, admitted that she gained a lot of experience and new knowledge from the training. According to Mila, in addition to being a resource person who was competent in providing material, the training also made her meet new people, so they could share their enthusiasm to become volunteer assistants.

“There are so many things that I got from here apart from the resource persons who are very competent and very good at providing exceptional knowledge that I have never had before,” said the representative participant from the Dharmais Hospital.

“With this event I feel happy because this is my new experience to be here to meet amazingly great friends too. In the future with the completion of this event, God willing, will participate in the activities of cancer survivors volunteers,” she added.

Similarly, Fatmawati, a participant from Kendari, said that the training held by YKPI gave her a lot of knowledge and increased motivation in being active in the community to provide assistance and provide education related to cancer, especially breast cancer.

“With this training, we are motivated to continue to join the community, motivate them to stay safe, care for their health, especially for cancer. I hope in the future it can be further improved or sustains like this,” she said.

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Early Detection of Breast Cancer Helps Faster Healing

Breast cancer is a deadly disease, which generally targets women. Therefore, every woman should pay attention that there are certain conditions or characteristics of women who can be more at risk of developing this cancer.

Based on the data from the Indonesian Breast Cancer Foundation (YKPI) chaired by Linda Gumelar, many Indonesian women have breast cancer. But about 80 percent of these cancer cases have just been dealt with when they are at an advanced stage

For this reason, according to the Director of the Dharmais Cancer Hospital (RSKD), Prof. Abdul Kadir, early detection of breast cancer in women will accelerate the rate of recovery of these patients. In addition, he considered early detection would also reduce the costs incurred during the treatment period.

“We expect the cure rate from breast cancer will be quite good. But of course, if a person comes in an advanced stage, then the medical expenses that they will incur are far more expensive than if she/he comes in the early stages. The recovery rate will be better if they come in the early stages than in an advanced stage,” Kadir said after signing a children and teenage’s ward inscription with the Indonesian Children’s Oncology Foundation in Jakarta, Thursday (27/06).

During this time, Kadir continued, most cancer patients who came to RSKD were in stage three or four (advanced). “Frankly for breast cancer patients, 70 percent of them come in stages three and four. Just 30 percent come in the initial stage,” he said.

For this reason, Kadir urges the public to be able to understand the initial symptoms of breast cancer, so that treatment can be done immediately without waiting until it reaches the advanced stage level.

” For example, when our mothers or our sisters find lumps in their breasts or there may be discoloration from the breast or maybe the nipple area pulled in or the skin of the breasts becoming rough or there may be fluid coming out mixed with blood, please you should go to the hospital to do a complete examination to prove that the disease is not due to breast,” said Kadir.

“If it is really breast cancer, just complete treatment as much as possible,” he added.

The man from South Sulawesi also appealed to the public to do proper treatment instead of looking for treatment by traditional physician, healers or herbalists who are feared to actually aggravate breast cancer.

“I urge the people not to come to traditional physicians, traditional healers, traditional treatments that will actually inhibit the examination and treatment of breast cancer itself or cause cancer to develop rapidly,” he hoped.

Kadir added that 67 percent of patients treated at RSKD were patients with breast cancer. But the cure rate is more than other cancers.

“Thank God, this breast cancer survival rate is far better than other cancers because they are easily detected, so that they arrive here in stages two or three,” he added.

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Breast Cancer in Men Turns More Acute

Like women, men also have an equal chance of developing breast cancer. However, in men it turns out that the number one killer in Indonesia can be more acute.

Oncology surgeon from Dharmais Cancer Hospital, Dr. Walta Gautama, Sp. B (K) Onk explained that the acute cause of breast cancer in men is caused by thinner breast walls than those of women.

And statistically, although the ratio is 1: 100, male breast cancer is mostly only known after it gets into the advanced stage.

“So the cancer is faster, the stage is higher, and it spreads faster. Where does it spread? To the bone,” said Dr. Walta at the Socialization of Early Breast Cancer Detection from the Indonesian Breast Cancer Foundation (YKPI), in the auditorium of the State Civil Service Agency (BKN), Jakarta, on Tuesday (25/7).

As for breast removal surgery, Dr. Walta continued, the therapy given to men and women is slightly different. In women, breasts may still be maintained with certain conditions.

“But if the male is certain (lifted), because it is thinner. In fact, we recommend that if necessary the muscles under the nipple are removed, so it’s not just the lump,” explained the Chairperson of the Indonesian Oncology Surgeon Association.

Thus, to minimize the chance of breast cancer development, Dr. Walta urges the public to actively check their own breasts (Realize/ BSE). The practice of the BSE has the same stages for both men and women.

“The method is the same as the BSE by women. In principle, all breast areas must be touched. Just because generally male breast glands do not grow, so it must grow lot in the nipple area,” he said.

 

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